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2023-06-26 17:48
Woman with four digits ‘identified with Mickey Mouse growing up’ wants to be role model she never had
A 27-year-old woman with a rare genetic disorder who could only identify with Mickey Mouse while growing up due to the shape of the Disney character’s hands is trying to be the role model she never had as a social media influencer, to show people with disabilities they are “fully worthy and capable” of achieving anything. Rochelle Muir, who lives in Colorado, was born with ectrodactyly, which means she has three fingers and a thumb on each hand, two toes on her right foot, and four toes on her left foot. The condition causes difficulties in buying footwear, and with relationships – with one of her ex-boyfriends splitting up with her due to the possibility of their child being born with ectrodactyly – but she is now happily partnered with Charles, 31, a primary school counsellor who, along with her father Bill, is her “biggest cheerleader”. Rochelle, who is a client engagement manager for a healthcare company, could identify with characters such as Mickey Mouse growing up as he also has four digits, but she said “being like a cartoon is not exactly the role model you want”. She now posts pictures and videos on her social media platforms to educate others about ectrodactyly, raise awareness of the limb difference community, and share her hobbies, including gaming. “I remember specifically always loving the characters which had brown hair whenever they were in Barbie movies because I thought, ‘Oh, she’s like me!’,” she told PA Real Life. “But I never had that feeling when it came to my limb differences.” Rochelle has never let the disorder hold her back despite being teased and bullied at school, but when she entered the dating world in her 20s, she faced rejection multiple times and felt she was not “capable or worthy of having an amazing relationship”. “I’ve never been rejected over something that I couldn’t change about myself, something I was born with, and that was probably the first hit to my confidence with my limb differences where I felt awful about being born the way I am, about being disabled,” she said. “I just thought, I’m never going to find a meaningful relationship, I’m not worthy, I’m not capable, and that was the dialogue that kept going through my brain over and over again.” Rochelle has since removed “that nasty little voice out of (her) head”, found love with partner Charles, and shared her story publicly on social media, as she wants to “uplift” others among the disability community and show the world that “disabled is not a dirty word”. She said she is no longer “worried about showing (her) true self” and wants to encourage others to do the same. “Most people usually point out the negatives, but there are so many great positives with going and finding other people that look like you, other people you can connect with, and just creating this amazing community where you can uplift each other,” she said. “That’s one of the things I love about social media so much because when I came out about my limb differences, other people reached out and said, ‘Hey, I look exactly like you, this is so exciting, I’ve never seen anyone else that has the same hands as me’. “So it’s one of my favourite things now – and, yes, it’s sad that we didn’t have that growing up, but at least it’s there now and we can have that moving forward.” Ectrodactyly is a rare genetic disorder, and symptoms can vary, the National Organisation for Rare Disorders says. Rochelle underwent surgery to minimise the gap between her fingers and remove the longer toe on her right foot, enabling her to have improved grip and wear shoes from a young age. However, finding the right shoes has been an ongoing challenge and, when she was younger, she could not understand why she could not wear the same shoes as “able-bodied” people. “I remember specifically, there was a time, I think I was about five, that I tried to get my mum to buy me a pair of flip flops – they were pink, and they had butterflies and flowers on them,” she said. “My mum was so heartbroken because she couldn’t fully explain to me, ‘No, you can’t wear these shoes, they are going to be too dangerous for you’. “She eventually just caved and got me the shoes, and we were going up the escalator to go to the next floor in the mall, and I tripped, and we fell. “Ever since then, I’ve thought, I’m going to wear shoes that will stay securely on my feet.” Throughout her life, Rochelle has used humour to “defuse” awkward or uncomfortable situations and to enhance her confidence, but when it came to dating, for the first time in her life she felt self-conscious and “unworthy of having a real relationship”. She remembers one boyfriend who “was like a deer in the headlights” when he saw her feet for the first time, and another who ended the relationship over the possibility of their child being born with ectrodactyly. “He talked to his family, and his mum at the time said, ‘You need to decide whether you want to have kids because if you do, you have to break up with her’,” Rochelle explained. “The relationship ended, and I thought, I can’t blame him, but when I spoke to my friends, they said, ‘You’re amazing. What’s wrong with having a child with a limb difference?’ “That’s when I realised that I had internal ableism, where I told myself that having a disability is awful – ‘you’re not capable, you’re not worthy of having an amazing relationship’.” Ableism is discrimination in favour of able-bodied people – and it was at this point that Rochelle decided she wanted to do something about the lack of representation for people with ectrodactyly on social media. This “lit the fire” in her to share her story publicly for the first time, aged 25, and she has never looked back. Since then, she has launched her own Instagram, TikTok and YouTube channels on which she discusses ectrodactyly, limb differences and other disabilities, along with her hobby of gaming, and she has met Charles. Reading positive comments and messages, including from mothers of children who describe her as “an amazing role model”, has been “heart-warming” and makes her emotional – and she wants to continue to “fight ableism and bring more representation for the limb difference community”. “The biggest thing for me is representation for the limb difference community, but also for other disabilities as well, because the more we have that out there, the more of a norm it will be,” she said. “I want to be that role model, that person I wanted to look for in social media growing up, that person that younger me would be proud of and say, ‘Oh yeah, I know her, she’s so awesome, I’m just like her’. “It’s a younger me that inspires me to keep going forward and talking about these things, and I want to give the message that disabled is not a bad word, it’s not a dirty word, and you are fully worthy and capable of anything you put your mind to.” Find out more about Rochelle and her social media channels at beacons.ai/goodmornindreamer Read More Tempted to try barefoot running? 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2023-08-22 21:59
Aja Naomi King 'deserves' to take time for her skincare routine
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2023-10-16 18:15
Senators hail Health Dept. recommendation to ease restrictions on marijuana
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2023-08-31 09:39
Virgil van Dijk will show he is Premier League’s best once more – Sami Hyypia
Former Liverpool captain Sami Hyypia believes Virgil van Dijk will prove this season he is once again the best centre-back in the Premier League. The Netherlands international has faced questions about whether can rediscover the form which arguably made him the world’s top defender prior to a knee ligament injury in October 2020. However, there are signs the current Reds skipper is edging closer to his best with his commanding performance in the weekend’s Merseyside derby win over Everton another indicator of a return to his previous high level. “He is one of the best in the business in the world,” Hyypia told the PA news agency at a Nike Game On initiative which, in conjunction with the LFC Foundation, has provided more than 8,000 local schoolchildren with access to a range of sports. “I think he has raised the standard with everyone expecting him to play at that level every time and that is very difficult. “But he is doing well, he is a big part of our team and a big leader of the team so I think we all need to be patient and his best is coming. “I think this season he has shown in some games he is still at the level and I have no doubts he will be the best centre-back in the league this season.” Despite their good start to the season there has been scrutiny on Liverpool’s defence, with right-back Trent Alexander-Arnold now operating in a hybrid midfield playmaker role in possession and opponents seeking to exploit the space in behind. The focus is likely to intensify following the news left-back Andy Robertson will be sidelined for three months after shoulder surgery, with Kostas Tsimikas having to deputise. I have no doubts he will be the best centre-back in the league this season Sami Hyypia on Virgil van Dijk But Hyypia has faith in both Liverpool’s full-backs, adding: “Trent is like a midfield player. He can pass short and long and has the vision to see the passes. “I think this role suits him well and when he is in the midfield position he doesn’t have that big distance to go back defending when we lose the ball.” On Tsimikas, the former Finland international said: “I think he will get a lot of responsibility now and he has his chance to show what kind of player he is. “Hopefully he is courageous and takes his chance. If that is not going to work then Jurgen (Klopp) needs to think of something else to solve the problem but I have confidence in Tsimikas that he can do the job.” Having come through a testing set of fixtures Liverpool sit third in the table, a point behind leaders Manchester City. With games to come against Nottingham Forest, Bournemouth and Luton – all teams in the bottom six – and Brentford before a late November trip to the Etihad Stadium, Hyypia believes the platform has been laid for another title challenge. “The ambition is to win the league,” he said. “As long as we are competing until May to be the champions I think we can say we will have had a successful season. “The top four is always the minimum target to reach but everyone wants success and some trophies this season. “It would be foolish to look at what the others are doing. We just concentrate on what we are doing and do what we do best and then we see what the result is.” The first three years of Game On programme, funded by Nike and delivered by the LFC Foundation, has engaged more than 8,000 children – including 950-plus disabled and 1,000-plus ethnically-diverse participants – aged between seven and 12 and 46 grassroots sports clubs with coaching delivered in 15 different sports. “Game On is about using the power of sport, Nike and Liverpool to engage local young people in sport – unusually for us not football,” said LFC Foundation chief executive Matt Parish. Read More Brydon Carse backed to take on Liam Plunkett role after England World Cup call The sporting weekend in pictures Philadelphia Eagles sink Miami Dolphins as Super Bowl rivals set the pace Man Utd expect to pay further tribute to Sir Bobby Charlton on Tuesday night Pep Guardiola admits winning treble has taken toll on Manchester City Gary O’Neil determined to repay Wolves for their faith after Bournemouth sacking
2023-10-23 16:00
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Dillon Danis claims Logan Paul fight is off and he’ll be facing Jake Paul instead
Dillon Danis has claimed his hotly-anticipated fight with Logan Paul is cancelled and that he'll be fighting Paul's brother, Jake, instead. The MMA fighter accused his Youtuber/boxer opponent of breaking the rules surrounding their weigh-in ahead of their boxing match in Manchester on Saturday, which they are competing in alongside Tommy Fury and KSI, in a series of posts on Twitter/X. But Paul denied the claims and replied with a video of him on the scales coming in at 194.3lbs. Danis didn't back down. "He claims he made weight, but it doesn't count," he said. "The rules are the rules." "If he wants to be viewed as a genuine boxer, he needs to follow the 11 o'clock deadline. Look at the time he posted. It's not fair; I had to follow the rules, and he isn't an exception." He continued in another post: "The commission's rules state that weigh-ins are between 10 and 11. If you miss the 11 o'clock deadline, you've missed weight. I weighed in at 10:15, but Logan still hasn't. "The commission said that if he doesn't arrive by the 11am deadline, the fight is off. He missed the weight, but then called misfits and changed the rules to give himself an extra hour. "We should be on an even playing field, he shouldn't get special treatment. He’s already got more juice than Tropicana. He missed the weight, plain and simple. They’re trying to handicap me as much as possible.' Then he said he was fighting the other Paul brother instead but whether that ends up being more trash talk to psyche out his opponent or a reality remains to be seen. However, the Mirror reports that Paul did indeed make weight on time, which would disprove Danis’s claims. What a palava. Sign up to our free Indy100 weekly newsletter Have your say in our news democracy. Click the upvote icon at the top of the page to help raise this article through the indy100 rankings.
2023-10-13 21:40
Asia shares up as China extends rally; Japanese yields a risk
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Falkland Islands sovereignty not up for debate, says Rishi Sunak's spokesman
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Blue Jays fans serenade Aaron Judge with boos after cheating allegations
Suddenly, Aaron Judge has become the villain of the Toronto Blue Jays. And just because he looked the wrong way.In the second game of a series between the New York Yankees and the Toronto Blue Jays, Aaron Judge was booed.In games prior, Judge may have received boos because opposing fans were...
2023-05-17 07:59
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