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10 things you should know about living with a stoma
Musician Tom Speight was diagnosed with the long-term bowel condition Crohn’s disease 15 years ago. After undergoing emergency surgery for the condition , he had a stoma connected to his digestive system. As today marks World Inflammatory Bowel Diseases Day (IDB), Speight has opened up about the realities of living with a stoma and debunks 10 common misconceptions about his condition. A stoma is an opening on the abdomen that can be connected to either your digestive or urinary system to allow waste to be diverted out of your body. Stomas are sometimes used after surgery to remove cancers in your pelvic area or help treat inflammatory bowel diseases, such as Crohn’s disease or ulcerative colitis. How does Crohn’s impact on your life and mental health? Over the years, [there have been some] really difficult situations to deal with – I was hospitalised last year while I was making my album, and lying in hospital, not knowing if I was going to be well enough to finish what I’d been working so long and so hard for was really really demoralising. For me, stress is a big trigger, so when you’re stressing about keeping up with everything and keeping on top of things it was actually making me worse. There’s a ripple effect to this disease in that your limitations can affect how others [family and friends] live their life,” he said. “I’ve been having regular therapy since 2019 to help manage my stress and improve my mental health. Working out how to manage the condition is unbelievably frustrating. Finding the right team of doctors, the right medication, and the right diet is such a draining process. For me, one of the hardest parts is knowing that despite everything you try, the trial and error process you go through can ultimately put you back in hospital if it’s not quite right. It can be a scary thought. The prospect of having a third operation or a sixth stay in hospital is always there, at the back of my mind. Here are the 10 most common misconceptions about living with a stoma, according to Speight: 1. Swimming is fine Often people believe that having a stoma means you can’t enjoy the same hobbies and activities that you did before you had the operation. Swimming comes to mind first: I think people presume you’ll have a leakage or accident, but in the 10 years I’ve had the stoma. I’ve never once had a problem. The stoma bag is waterproof and secure due to its adhesive. There’s no reason why a person with a stoma can’t swim with confidence. 2. What you can and cannot eat When I first spoke to my stoma nurse, I asked about my dietary requirements and what to avoid... you’d be surprised about what’s on the forbidden list. Some people may be advised to avoid eating very fibrous foods, or foods with tough outer skins such as sweetcorn, popcorn, peas and potato skins, to avoid causing a blockage in the bowel. Often eating out can feel like a game of Russian roulette. I’ve had many episodes where I’ve been caught out and been absolutely floored in the process. 3. Being visible I was 24 when I first had the emergency surgery to have a stoma. At the time, I thought having the operation would mean my career was over... you can’t be a pop star and have a bag, right? In reality, no one actually will know until you tell them. I’ve worn tight-fitting clothes while channelling my best Freddie Mercury moves and it’s never been a problem. I kind of wish I could tell my younger self that things will be ok and it’s not the end. In some ways, it was just the start, because it gave me a whole new lease of life. 4. ‘Only elderly people have stomas’ I originally thought only old people have stomas, and yes, the elderly are more likely to have a stoma, but surgery can be performed on anybody at any age. I’ve met a number of younger people through the charity Crohn’s & Colitis UK who are just like me, and it’s quite comforting to know you’re not alone. 5. Sex Without being too graphic, this isn’t a problem. It’s all about finding the right partner who can make you feel safe and confident. 6. Smell A lot of the misconceptions about having a stoma were things I initially thought too. I thought it would be unhygienic and, quite frankly, not smell so fresh. The reality is, you’ll only ever notice the smell when you go change it in the toilet. In some ways, it would be no different from anyone else using the loo 7. Is this permanent? For some patients, a stoma is permanent. However, for many, an ostomy is performed to allow for the bowel to heal from scarring, inflammation and infection. I personally need to get to a level of health where a reversal could be performed, while also managing to take some time off to heal properly. 8. ‘You can’t exercise’ I think this misconception might be because people might think you’re vulnerable or weak due to the operation. Exercising regularly can have a really positive impact on people with a stoma, as it reduces the risk of a hernia and keeps your body fit. I’ve never felt stronger in my life. 9. Find the nearest toilet I think people often think you’re walking around with poop all day... this isn’t the case! You just have to go to the toilet like everyone else. 10. The reality is... Yes, it’s a life changing operation but with a few mindful changes you can lead a happy and healthy life. Just avoid the popcorn and drink plenty of water. 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Ange Postecoglou’s four new signings breathe fresh life into different Tottenham
Something is different at Tottenham: check the table, they are top and playing like league leaders as well. Ange Postecoglou’s side returned there after confidently asserting their superiority over Fulham in this comfortable 2-0 win in north London. Tottenham extended their best start to a season since 1960 with a helping hand from the visitors, who were hapless, and Calvin Bassey, who was culpable for both goals and fortunate it wasn’t more. Spurs, in essence, scored the same goal twice, with Bassey giving away possession with a loose pass into midfield and Micky van de Ven sharply intercepting on the half-way line. Son dispatched the first on 36 minutes after dancing past Bassey and curling into the top corner; then Son set up James Maddison to double their lead shortly after half-time. The finish, again, was ruthless. Spurs could have been out of sight long before then had Richarlison and Dejan Kulusevski been as clinical, but a seventh victory out of nine so far in the Premier League never felt in doubt after Son continued his own excellent start to the campaign. Spurs enjoyed periods of control and flowed forward dangerously. There was, significantly, a sense that Tottenham’s players were enjoying this. Clearly, that is mirrored in the stands as well: if Postecoglou has arrived and convinced Tottenham they can be something new, the fans chosen to be fun and carefree. It is not surprising, therefore, that that spirit has been brought by those who did not play here under Antonio Conte or Nuno Espirito Santo or Jose Mourinho, and who embody the fresh start that Postecoglou has been able to make. The Australian’s four summer signings who started against Fulham, in Maddison, Van de Ven, goalkeeper Guglielmo Vicario and Destiny Udogie, were all outstanding again. If Postecoglou’s presence has lifted Spurs, they are the ones who carry his message onto the pitch. Maddison’s quality is obvious in every touch, as is the idea that he has taken responsibility to drag Tottenham out of the existential crisis they faced here last season. The centre-back Van de Ven has become an unlikely fan favourite, bringing an energy and enthusiasm into every defensive action. Tottenham’s two goals would not have been scored without him and it was an illustration of why the German has become so appealing to the fans here: he wants this, and he’s doing it for you. Add in the quality that was already here and this Tottenham side has the makings of something exciting: how good this team really is remains to be seen, but another remarkable aspect of the transformation under Postecoglou is how those who appeared beaten and washed out last season have been revived. Son is devastating again, Kulusevski threatening with every touch, his dribble returning to such a fine, gliding motion. Perhaps most extraordinarily of all, Cristian Romero has emerged as the calm head guiding the defence. Yet in the first half, it was Udogie who shined brightest in spells, the 20-year-old a fearless example of what Tottenham are now all about. In his hybrid role from full-back, the Italian is already becoming vital to this attacking, dangerous Spurs, often playing further forward then Maddison when Postecoglou’s side have possession. Udogie, with his ability to receive the ball with back to goal, absorb pressure, and then shrug it off like a discarded cloak, offered a threat that Fulham struggled to pin down – the visitors breathed a sigh of relief when he was removed as Tottenham went 2-0 up. Udogie went off to a standing ovation. Son turned and beckoned for more. Meanwhile, there is Vicario, who looks as if he won’t concede a goal ever again. Already with the best save percentage in the Premier League before Monday night, the Italian has stepped in to give Tottenham a secure and reassuring presence. The goalkeeper appears built to handle the nervy moments that invariably come with playing for Tottenham, a part that Hugo Lloris, for all his years here, never felt quite fit for. Because for all that Tottenham were dominant against Fulham and the only team who ever looked capable of winning, there have previously been times where such a script has gone wildly off course. On 12 minutes, Vicario was there with an excellent leap and strong left arm to deny Palhinha’s free header, in what was the visitors’ first attack. It was a moment that came after a spell of overwhelming Tottenham dominance, and therefore a natural point for them to concede. But Fulham barely threatened again until it was too late. Silva’s side were a mess at the back, the absence of Issa Diop at the back compounded by Bassey’s woefully inaccurate performance. Fulham teased Tottenham with their reckless play into midfield: it may have worked in the past, against a passive Spurs, but Van de Ven and the excellent Pape Matar Sarr snapped into challenges and from there Fulham leaked chances like a sieve. And so, Postecoglou’s different Spurs left the Premier League table looking as it did at the start of the weekend: Tottenham are back at the top and looking down. Read More Tottenham Hotspur vs Fulham LIVE: Latest Premier League updates Ange Postecoglou hopes Tottenham can offer fans ‘escape’ from Israel-Hamas conflict Tottenham reveal Rodrigo Bentancur injury update as key midfielder nears return Can Tottenham’s best-ever Premier League start really go the distance? 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