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A 27-year-old woman with a rare genetic disorder who could only identify with Mickey Mouse while growing up due to the shape of the Disney character’s hands is trying to be the role model she never had as a social media influencer, to show people with disabilities they are “fully worthy and capable” of achieving anything. Rochelle Muir, who lives in Colorado, was born with ectrodactyly, which means she has three fingers and a thumb on each hand, two toes on her right foot, and four toes on her left foot. The condition causes difficulties in buying footwear, and with relationships – with one of her ex-boyfriends splitting up with her due to the possibility of their child being born with ectrodactyly – but she is now happily partnered with Charles, 31, a primary school counsellor who, along with her father Bill, is her “biggest cheerleader”. Rochelle, who is a client engagement manager for a healthcare company, could identify with characters such as Mickey Mouse growing up as he also has four digits, but she said “being like a cartoon is not exactly the role model you want”. She now posts pictures and videos on her social media platforms to educate others about ectrodactyly, raise awareness of the limb difference community, and share her hobbies, including gaming. “I remember specifically always loving the characters which had brown hair whenever they were in Barbie movies because I thought, ‘Oh, she’s like me!’,” she told PA Real Life. “But I never had that feeling when it came to my limb differences.” Rochelle has never let the disorder hold her back despite being teased and bullied at school, but when she entered the dating world in her 20s, she faced rejection multiple times and felt she was not “capable or worthy of having an amazing relationship”. “I’ve never been rejected over something that I couldn’t change about myself, something I was born with, and that was probably the first hit to my confidence with my limb differences where I felt awful about being born the way I am, about being disabled,” she said. “I just thought, I’m never going to find a meaningful relationship, I’m not worthy, I’m not capable, and that was the dialogue that kept going through my brain over and over again.” Rochelle has since removed “that nasty little voice out of (her) head”, found love with partner Charles, and shared her story publicly on social media, as she wants to “uplift” others among the disability community and show the world that “disabled is not a dirty word”. She said she is no longer “worried about showing (her) true self” and wants to encourage others to do the same. “Most people usually point out the negatives, but there are so many great positives with going and finding other people that look like you, other people you can connect with, and just creating this amazing community where you can uplift each other,” she said. “That’s one of the things I love about social media so much because when I came out about my limb differences, other people reached out and said, ‘Hey, I look exactly like you, this is so exciting, I’ve never seen anyone else that has the same hands as me’. “So it’s one of my favourite things now – and, yes, it’s sad that we didn’t have that growing up, but at least it’s there now and we can have that moving forward.” Ectrodactyly is a rare genetic disorder, and symptoms can vary, the National Organisation for Rare Disorders says. Rochelle underwent surgery to minimise the gap between her fingers and remove the longer toe on her right foot, enabling her to have improved grip and wear shoes from a young age. However, finding the right shoes has been an ongoing challenge and, when she was younger, she could not understand why she could not wear the same shoes as “able-bodied” people. “I remember specifically, there was a time, I think I was about five, that I tried to get my mum to buy me a pair of flip flops – they were pink, and they had butterflies and flowers on them,” she said. “My mum was so heartbroken because she couldn’t fully explain to me, ‘No, you can’t wear these shoes, they are going to be too dangerous for you’. “She eventually just caved and got me the shoes, and we were going up the escalator to go to the next floor in the mall, and I tripped, and we fell. “Ever since then, I’ve thought, I’m going to wear shoes that will stay securely on my feet.” Throughout her life, Rochelle has used humour to “defuse” awkward or uncomfortable situations and to enhance her confidence, but when it came to dating, for the first time in her life she felt self-conscious and “unworthy of having a real relationship”. She remembers one boyfriend who “was like a deer in the headlights” when he saw her feet for the first time, and another who ended the relationship over the possibility of their child being born with ectrodactyly. “He talked to his family, and his mum at the time said, ‘You need to decide whether you want to have kids because if you do, you have to break up with her’,” Rochelle explained. “The relationship ended, and I thought, I can’t blame him, but when I spoke to my friends, they said, ‘You’re amazing. What’s wrong with having a child with a limb difference?’ “That’s when I realised that I had internal ableism, where I told myself that having a disability is awful – ‘you’re not capable, you’re not worthy of having an amazing relationship’.” Ableism is discrimination in favour of able-bodied people – and it was at this point that Rochelle decided she wanted to do something about the lack of representation for people with ectrodactyly on social media. This “lit the fire” in her to share her story publicly for the first time, aged 25, and she has never looked back. Since then, she has launched her own Instagram, TikTok and YouTube channels on which she discusses ectrodactyly, limb differences and other disabilities, along with her hobby of gaming, and she has met Charles. Reading positive comments and messages, including from mothers of children who describe her as “an amazing role model”, has been “heart-warming” and makes her emotional – and she wants to continue to “fight ableism and bring more representation for the limb difference community”. “The biggest thing for me is representation for the limb difference community, but also for other disabilities as well, because the more we have that out there, the more of a norm it will be,” she said. “I want to be that role model, that person I wanted to look for in social media growing up, that person that younger me would be proud of and say, ‘Oh yeah, I know her, she’s so awesome, I’m just like her’. “It’s a younger me that inspires me to keep going forward and talking about these things, and I want to give the message that disabled is not a bad word, it’s not a dirty word, and you are fully worthy and capable of anything you put your mind to.” Find out more about Rochelle and her social media channels at beacons.ai/goodmornindreamer Read More Tempted to try barefoot running? 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The eyebrows that were raised when Brighton replaced Graham Potter with Roberto De Zerbi have been put firmly in their place over the last 12 months. It was on September 18 a year ago, only 10 days after Potter’s departure for Chelsea, that the Seagulls announced their new boss would be a little-known Italian. Brighton chairman Tony Bloom had identified De Zerbi as his next managerial target some time before after being impressed by his work in Italy with Benevento and Sassuolo, which then continued when he moved to Shakhtar Donetsk. Arriving at Brighton with little English and big boots to fill, it was perhaps not surprising it was seen as a risky move but the only question now is how long the Seagulls will be able to hang onto him. De Zerbi did not win any of his first five games in charge but thumped Potter’s Chelsea 4-1 for his maiden victory and did not look back. Premier League highlights included the double over Chelsea and wins over Liverpool, Manchester United and Arsenal while they also beat Liverpool during a run to the semi-finals of the FA Cup that only ended with a penalty shoot-out loss to United. Brighton eventually finished sixth, securing European football for the first time in the club’s history with a place in the Europa League. And they have picked up where they left off this season, winning four of their opening five matches, including back-to-back 3-1 wins over Newcastle and Manchester United. That is despite again selling a number of their star performers, with Moises Caicedo and Robert Sanchez heading to Chelsea and Alexis Mac Allister to Liverpool. Selling on players and reinvesting the money in potential stars of the future is central to the Brighton model. Marc Cucurella, Yves Bissouma, Leandro Trossard, Ben White and Dan Burn have all departed the Amex Stadium for bigger Premier League names in recent seasons while the likes of Kaoru Mitoma and Evan Ferguson are sure to be on many wishlists. The no-nonsense De Zerbi has clearly had a big impact on the players he has worked with, and Lewis Dunk opened up on the Italian’s methods after regaining his place in the England squad. “Football-wise, since the new manager at Brighton has come in I see football in a completely different way, I picture it in a different way and that is the biggest thing,” he said earlier this month. “Football is not what I thought it was. Just how we play now. The idea of what I did before, I thought it made sense. But when you learn something completely different, you believe in it and this makes sense. “You think, ‘Why didn’t I know this?’ and, ‘Why didn’t I do this before?’ “(I) know every position on the pitch and where they should be. The time they should move and what angles they should give. We see it every day and it makes life simpler.” That attention to detail and precision is at the heart of De Zerbi’s footballing philosophy, with Brighton widely praised for their attacking panache and high-energy game. Balancing trying to take another step forward in the Premier League this season with the demands of European football is a new challenge for De Zerbi but, based on the last 12 months, it would be no surprise if he found the right formula. Read More Charity boss speaks out over ‘traumatic’ encounter with royal aide Ukraine war’s heaviest fight rages in east - follow live Paul Collingwood backs Zak Crawley to excel in role of England captain Pep Guardiola challenges Man City to win back-to-back Champions League titles Conor Murray: Ireland squad in ‘unbelievable nick’ ahead of South Africa clash

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