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US FDA approves Johnson & Johnson's blood cancer therapy
US FDA approves Johnson & Johnson's blood cancer therapy
(Reuters) -Johnson & Johnson said on Thursday the U.S. Food and Drug Administration had approved its antibody-based therapy for patients
1970-01-01 08:00
At least 17 dead as boat carrying Rohingyas sinks in Bay of Bengal
At least 17 dead as boat carrying Rohingyas sinks in Bay of Bengal
At least 17 Rohingyas were killed and 30 remain missing after a boat capsized in bad weather in
1970-01-01 08:00
Dancer who has Tourette’s tics says Lewis Capaldi’s Glastonbury performance left her ‘speechless’
Dancer who has Tourette’s tics says Lewis Capaldi’s Glastonbury performance left her ‘speechless’
A dance teacher diagnosed with Tourette’s syndrome – meaning she has unpredictable tics where she whistles, blinks and sometimes swears – has said watching Lewis Capaldi’s “beautiful” Glastonbury performance left her “speechless” and she wants to raise awareness of the incurable condition so others do not feel “lost or alone”. Bryony Munro, 24, a dance teacher who lives in Scotland, started experiencing symptoms of Tourette’s syndrome – a condition which causes a person to make involuntary sounds and movements called tics – when she was 12 as she started to spontaneously hiccup. However, it was not until her early 20s, in summer 2021 – when her limbs started “jerking all the time” and she developed other tics, such as whistling, clearing her throat and blinking – that she received an official diagnosis, which she described as “bittersweet”. “I was very happy to have that definition, but then knowing what comes with that was very daunting and scary; I was terrified,” Bryony told PA Real Life. In the years leading up to her diagnosis, Bryony said people would stare at her in public, whisper, and talk behind her back, saying “She’s making it up” or “She’s faking it” – and this made her realise that “people are very misinformed of what Tourette’s is”. “People treated me differently because they didn’t believe I was telling the truth and they tried to tear me down,” she said. “I wish they would have just asked me questions rather than making up rumours behind my back that aren’t true.” Bryony has since set up her own Instagram and TikTok accounts to address the most common misconceptions about Tourette’s, as she wants to raise awareness of the condition, but the “outlets” that have helped her through her darkest times are music, singing and dancing. She said performing in front of an audience can be “terrifying” when you have Tourette’s, but she believes Capaldi’s moving performance at Glastonbury, where he appeared to struggle with an increasing number of tics while singing his hit song Someone You Loved, will help to change the way the condition is perceived. “It was almost like an out-of-body experience because I just put myself in his shoes,” she said. “My heart broke – not in a bad way – but seeing the amount of love he received from his fans left me speechless, it was just beautiful, and having so many people watch that live or online just brings so much awareness and takes the pressure off the Tourette’s community because they are beginning to see what it’s really like for people with the condition.” Tourette’s syndrome is a condition that causes a person to make involuntary sounds and movements called tics, and there is no cure, the NHS says. Tics are not usually harmful to overall health, but physical manifestations, such as jerking of the head, can be painful, and may be worse during periods of stress or anxiety. Bryony’s first tic came in the form of a hiccup or “inhale of breath”, which did not affect her daily life at the time, but her symptoms progressively worsened. Her tics became debilitating during the Covid pandemic, which led to her diagnosis in 2021, but her lack of knowledge about the condition initially left her feeling “terrified”. Her other diagnoses of obsessive-compulsive disorder (OCD), anxiety, depression and functional neurological disorder (FND) – which affects how the brain receives and sends information to the rest of the body and can cause Bryony to have absence seizures – added to her concerns as she feared she would have a “constant battle with her mind and body”. “I think seeing how it was presented on TV and in the media, and initially having my own misconceptions about Tourette’s, made me feel terrified to have to live with it,” she said. “Tics can be very damaging as there are very aggressive tics that can make you kick, punch, jump and literally jump out into oncoming traffic, which is terrifying. “When my tics first started getting worse, I had this punching tick where I punched a wall, but some of my other tics, like my toes wrinkling, are not visible to others. “I was very much in the dark to begin with, but doing research and reaching out to people was probably the best thing I could have done.” While Bryony’s tics have not put her in any life-threatening situations, she said daily tasks, such as brushing her teeth or doing her make-up, can be challenging and time-consuming. She cannot drive and, on days when her tics are particularly bad, she cannot cook, style her hair with straighteners or curlers, or use the kettle, as she could hurt herself. “It’s so unpredictable and, right now, I’m not able to go anywhere on my own just in case I do have an episode where I might hurt myself,” she explained. Bryony has “tools” to manage her Tourette’s, such as using stress toys to “keep (her) hands busy”, but she said she does not know where she would be without music, singing and dancing. She teaches dance to pupils ranging from two-and-a-half years old to 30, and said focusing on something else “helps (her) tics melt away for a little while”. She is training her golden retriever puppy Nala, whose name was inspired by Disney’s The Lion King, to become an assistance dog so she can “live a more normal life” in the future. “Having that independence back again from taking Nala into work, to do shopping, maybe to go to the gym, it will be so relieving; the pressure will be enormously decreased,” she said. “Even the social anxiety of being out of the house, having her with me will just be so good for me.” Bryony, who lives with her “incredibly supportive” fiance Matthew, 31, a chef, wants to continue raising awareness of Tourette’s, and is even more inspired to educate others after Capaldi’s performance at Glastonbury in June, as she has seen the “love” he has received and does not want anyone to feel “lost or alone”. “Knowing he had the support of every single person there; I couldn’t imagine the amount of love that he must have felt,” she said. “I felt it through watching it through my phone, I fully felt all of that.” She added: “You never know anyone’s full story or full life story, so accepting people for who they are, and accepting yourself for who you are, is probably the best advice I can give. “Also, just be kind because you have no idea what anyone is going through.” You can follow Bryony on Instagram or TikTok @brydoeslife Read More ‘Long Covid has taken away my ability to eat food or urinate in three years’ Grimes says her and Elon Musk’s three-year-old child X ‘knows a lot about rockets’ How many steps a day can cut risk of early death (and it’s not 10,000) ‘Long Covid has taken away my ability to eat food or urinate in three years’ Grimes says her and Elon Musk’s three-year-old child X ‘knows a lot about rockets’ How many steps a day can cut risk of early death (and it’s not 10,000)
1970-01-01 08:00
Big fashion is getting bigger. Parent of Coach will buy Versace owner Capri in $8.5 billion deal
Big fashion is getting bigger. Parent of Coach will buy Versace owner Capri in $8.5 billion deal
Tapestry, parent company of luxury handbag and accessories retailer Coach, is buying the owner of fashion brands including Michael Kors, Versace and Jimmy Choo, Capri Holdings
1970-01-01 08:00
AI supermarket app suggest meal that would create chlorine gas
AI supermarket app suggest meal that would create chlorine gas
An AI meal app suggested a "meal" that would create chlorine gas. The New Zealand app, created by supermarket chain Pak ‘n’ Save, was advertised as a way for customers to creatively use leftovers during the cost of living crisis. Users enter the ingredients they have in their homes and the app generates recipes. But New Zealand political commentator Liam Hehir noticed it made “aromatic water mix” when he put in ingredients that would create chlorine gas. The bot recommended the recipe as “the perfect nonalcoholic beverage to quench your thirst and refresh your senses”. “Serve chilled and enjoy the refreshing fragrance,” it said, despite the fact that inhaling chlorine gas can cause lung damage or death. Sign up to our free Indy100 weekly newsletter This was not the only dodgy recipe the app came up with. Posting on social media, others weighed in with grim recipes they had found, including "bleach-infused rice surprise" and "mysterious meat stew" made with human flesh. A spokesperson for the supermarket said they were disappointed to see “a small minority have tried to use the tool inappropriately and not for its intended purpose”. In a statement, they said that the supermarket would “keep fine tuning our controls” of the bot to ensure it was safe and useful, and noted that the bot has terms and conditions stating that users should be over 18. In a warning notice appended to the meal-planner, it warns that the recipes “are not reviewed by a human being” and that the company does not guarantee “that any recipe will be a complete or balanced meal, or suitable for consumption”. “You must use your own judgement before relying on or making any recipe produced by Savey Meal-bot,” it said. Sounds like it... Have your say in our news democracy. Click the upvote icon at the top of the page to help raise this article through the indy100 rankings.
1970-01-01 08:00
Lebanon bans 'Barbie' movie for 'promoting homosexuality'
Lebanon bans 'Barbie' movie for 'promoting homosexuality'
The ban comes amid heightened anti-LGBTQ rhetoric by some politicians and government officials in Lebanon and the wider Middle East.
1970-01-01 08:00
Airlines will continue to fly fewer flights to New York and Washington as FAA faces staffing shortages
Airlines will continue to fly fewer flights to New York and Washington as FAA faces staffing shortages
The federal government is allowing airlines to continue to run reduced flight schedules to major airports serving New York City and Washington in hopes of curbing flight cancellations and reducing the burden on short-staffed air traffic controllers.
1970-01-01 08:00
Joe Biden Tells Peter Doocy He Asked a Lousy Question
Joe Biden Tells Peter Doocy He Asked a Lousy Question
Fox News' Peter Doocy returned from paternity leave this week only to find that the White House had taken the show on the road. Doocy caught up with President Joe Biden in Albuquerque on Wednesday where he stopped him in a crowd and asked him about talking business on speaker phone, an accusation that was shot down by a witness while Doocy was still out on leave. Biden wasted no time welcoming Doocy back by saying, "I never talked business with anybody and I knew you'd have a lousy question." It's like he never left.
1970-01-01 08:00
Virgin Galactic all set to fly its first tourists to the edge of space
Virgin Galactic all set to fly its first tourists to the edge of space
Virgin Galactic is finally taking its first space tourists on a rocket ship ride after years of delays
1970-01-01 08:00
West Ham confirm signing of Edson Alvarez from Ajax
West Ham confirm signing of Edson Alvarez from Ajax
West Ham have completed the signing of midfielder Edson Alvarez from Ajax for £34m.
1970-01-01 08:00
It's not the 1970s but stagflation is back in the picture
It's not the 1970s but stagflation is back in the picture
For the past two years, economists have been worrying about the risks of high inflation rates. But far less attention has been given to inflation's sibling: stagflation.
1970-01-01 08:00
Uganda president defiant after World Bank suspends funding over LGBT law
Uganda president defiant after World Bank suspends funding over LGBT law
By Elias Biryabarema KAMPALA (Reuters) -Uganda's President Yoweri Museveni on Thursday denounced the World Bank's decision to suspend new funding
1970-01-01 08:00
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