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Many people with Huntington’s disease are being turned away from traditional mental health support, a charity has claimed as it called for more to be done to help people with the condition. Some mental health services have told patients that they do not have the specialist care needed, leading to the Huntington’s Disease Association calling for better help and support for people living with the disease. Huntington’s disease is a condition that stops parts of the brain working properly over time and can lead to problems with movement, cognition (perception, awareness, thinking, judgment) and mental health. Most people with the inherited condition will start to show symptoms between the ages of 30 and 50 and it gradually gets worse for around 10 to 25 years until the person dies. During all this time, my mental health was worsening. I’d seen my uncle commit suicide a few years before after his diagnosis and him not receiving the correct support and I was at a similar point Daniel Johnston There is no cure for Huntington’s disease or any way to stop it getting worse. A small new poll of 105 people with the condition, shared with the PA news agency, found that 85% had attempted to access community mental health services. But among this group, 56% claimed they had been denied access to care, the Huntington’s Disease Association said. Daniel Johnston, from Horam, East Sussex, said his local mental health service “didn’t know” where to refer him. The 41-year-old father of two said: “When I tested positive for Huntington’s, there was no specific pathway from that point for any mental health support. “I was confused, upset and angry about the diagnosis. I didn’t, and still don’t, fully understand my feelings of confusion and anger. “I wasn’t referred to a professional psychologist or anyone who knows how to support someone with a life-changing diagnosis such as Huntington’s. “During all this time, my mental health was worsening. I’d seen my uncle commit suicide a few years before after his diagnosis and him not receiving the correct support and I was at a similar point. “It was only when I explained to my consultant in our six-monthly appointment earlier this year the extent of my thoughts that he contacted the crisis team for me, and they began a course of daily calls for two weeks. “From this point onwards it’s been getting better, but I feel so sad for others who slip through the net so easily. “It’s as if people get afraid when you mention Huntington’s and there’s confusion around treating Huntington’s and treating mental health. “I’m not surprised by the amount of people being denied access to mental health support services due to having Huntington’s – I have been one of those people and it’s really scary.” The charity said hurdles often occur for patients after they have been referred by their GP for mental health support. Local mental health teams have told patients that Huntington’s “doesn’t fall under the remit of what they’re able to provide treatment for”. The charity has launched a new campaign, Mindful of Huntington’s, to raise awareness of the cognitive impairment symptoms of the disease, and has called for greater access to mental health support. Cath Stanley, chief executive of the Huntington’s Disease Association, said: “Many people think of Huntington’s as a disease which impacts movement, but that is only half the story, and the non-physical symptoms are often overlooked. “At the Huntington’s Disease Association, we find people will most commonly be referred to mental health services due to cognitive symptoms such as irritability and aggression. “Throughout May, we will be focusing on these cognitive symptoms and the life-changing impact they can have. “The stark findings we’re announcing can’t be ignored – people are asking for much-needed mental health support, being turned away, and their health is deteriorating further. It is disappointing but not surprising to see that there’s still a lot of misunderstanding around Huntington’s.” To find out more visit: www.hda.org.uk Read More Charity boss speaks out over ‘traumatic’ encounter with royal aide Ukraine war’s heaviest fight rages in east - follow live Scottish first minister Yousaf calls cost of coronation ‘uncomfortable’ King Charles and other royals return to work after coronation Prince Harry’s ghostwriter opens up about harassment after ‘Spare’

Authorities say social media users must verify their identity, in order to crackdown on online crime.

A woman who says skin cancer treatment has left her looking like Freddy Krueger is urging others to respect the sun. Melissa Lewis, 48, has been living with skin cancer for more than a decade. She has annual treatment which gives her skin a pockmarked look, which she has compared to that of Krueger, a fictional killer. Melissa, from Sydney, Australia, hopes the yearly procedure will keep her cancer at bay. But she wants to speak out to warn others of the harm sun exposure can do, before it’s too late. The mum-of-four, a former nurse, said: “When they said I have Bowen’s disease I thought that was it. “When I looked it up I was like, ‘Oh my god, I am never going to be free’. It is something I have to keep on top of. “I have treatment once a year. I hate it, it is really stressful as I know my skin will hurt. “I will have up to 14 days looking like Freddy Krueger, I can’t go out in public. “I look at my own kids when I have had the treatment and they find it hard to look at me. “I tell them that this is why you put sunscreen on, this is why you are careful.” Melissa first spotted a basal cell carcinoma - a sign of skin cancer - on her leg in 2011. She has since found them on her forehead, nose, chest and back and has lost count of how many have been removed. But in 2018, Melissa discovered what looked like a group of freckles lumped together in front of her ear. Thinking it was best to get it checked out, she paid a visit to her dermatologist. Melissa was then referred her to the Melanoma Institute in June 2018 - which confirmed she had a melanoma. “I was very lucky to have caught it when I did,” she said. “It did make me think that, ‘This is it’. The dread I experienced when I heard that word was really intense. “Having four kids thinking I am not going to be there with them was so overwhelming. “You automatically fast forward to the worst-case scenario.” A month after her diagnosis, Melissa had her melanoma removed. And, two months after her surgery, a biopsy revealed Melissa had Bowen’s disease - an early form of skin cancer. Melissa said: “I am never going to be free from this. “Basically if I don’t have my cancers removed, it can become a more serious invasive cancer.” Since she was diagnosed with Bowen’s syndrome, Melissa undergoes a yearly none-surgical cancer treatment - Photodynamic therapy. Photodynamic therapy is a treatment that involves light-sensitive medicine and a light source to destroy abnormal cells. Melissa said: “I hate it, I get really anxious before I know I am coming up for treatment. “It is really stressful as I know how much it hurts. “My future will be to repeat expensive Photodynamic therapy with CO2 laser every year and always six monthly full skin checks. “It will be the only way to prevent further surgery and keep non-melanoma skin cancers from becoming invasive cancer.” Read More Four bowel cancer symptoms that can show two years before diagnosis Mum put on life support after infected finger led to ‘devastating’ diagnosis 6 mouth cancer symptoms everyone should know Mother left ‘looking like Freddy Krueger’ reveals first skin cancer warning sign Mum put on life support after infected finger led to ‘devastating’ diagnosis 6 mouth cancer symptoms everyone should know

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Video of Mark Zuckerberg's first jiu-jitsu fight.

As the date that the US could default on its obligations grows closer, the Treasury Department must prepare for an unprecedented situation -- figuring out which bills to pay with the money it has on hand if Congress doesn't act.

Derek Jeter has jokingly changed his Instagram bio to read “sleep-deprived father of four” while announcing the arrival of his and wife Hannah Jeter’s newborn son. On Monday 8 May, the former New York Yankees shortstop took to Instagram to share the news that his family had grown, with Jeter revealing that he and Hannah welcomed their newborn son Kaius Green Jeter on 5 May 2023. “Welcome to the world lil man!!! @hannahbjeter,” Jeter captioned a photo of the baby’s name and birth date. The five-time World Series champion’s post was met with an outpouring of congratulatory messages from his fans, followers and former teammates, with the official account for the Yankees writing: “Congratulations!!!” with three blue heart emojis. “Congrats captain,” someone else wrote, referring to Jeter’s former title of captain of the Yankees, a post he held from 2003 to 2014. Others took the opportunity to jokingly express their hopes that the newborn will follow in his father’s athletic footsteps. “Congratulations Mr Jeter!!! Thank you for providing the @yankees with their 2041 starting shortstop!!!” one person wrote, while another said: “Future Yankee.” Hannah also shared the news on her Instagram, where she reposted Jeter’s post to her Stories. In addition to son Kaius, the couple, who did not reveal they were expecting a fourth child, also have three daughters, River, 17 months, Story, four, and Bella, five. The retired athlete has spoken about his love of being a girl dad before, with Jeter telling Extra in 2022 that there’s a “whole other side” of him. “The mornings are early,” the former baseball player told the outlet. “Getting them up - they’re not in school right now - but dropping them off at school, picking them up. Tennis lessons, ballet lessons. I’m getting my nails painted and makeup on my face, dresses. So there’s a whole other side to me.” Read More Derek Jeter reveals he wore a ‘gold thong’ to break his slump during Yankee game Derek Jeter reveals he bribed his daughters with ice cream to sit through baseball game Derek Jeter gushes over being a girl dad to three daughters: ‘I’m getting my nails painted’

FIFA 23 81+ x11 Premier League Upgrade SBC is now live during Premier League Team of the Season. Here's how to complete the SBC.

FIFA 23 Premium Premier League Upgrade SBC is now live during Premier League TOTS. Here's how to complete the SBC.

Ralph Gonsalves says he would welcome an apology for injustices related to slavery.

A woman can barely use her hands and says her confidence has suffered after developing a suspected allergy to nail products. Lisa Dewey, 36, had been getting her nails done regularly for years without issue. But in February a set of gel nails became inflamed and started peeling away from the nail bed. At the time it was put down to a bacterial infection, and Lisa she was given a steroid cream and antibiotics to fight it. But after deciding to get a set of acrylic nails put on last month, the mum-of-two found she was hurting again. Once more, her nails became “very aggravated” and she could barely move her hands due to the pain. The NHS cleaner struggled to wash her daughter’s hair, do up a seatbelt, hold a pen and wash up. Now, despite years of nail treatments with no issues, she can never again have gel or acrylic nails, and believes it’s an allergy. Lisa, from Pattishall, Northants., said: “I’ve been getting my nails done all my life for acrylics or gels. “So when it first happened after a set of gels in February, I thought it was a bacterial infection. “My nail bed even started going purple and I worried I would lose the whole finger. “When I had them done again recently - this time acrylics - the same thing happened. “Now my skin is like paper tearing away from my fingers and I can barely move my hands from the pain. “It has knocked my confidence so much too - it’s so embarrassing and I’m always hiding my hands away.” Lisa, a mum of two girls aged three and 12, first noticed a reaction after getting gel nails applied in February. Despite getting the same treatment she had been having for years, within a matter of days her nails had began peeling up from the nail bed. One even went PURPLE - while the others became itchy and extremely sore. She never suspected her manicure could be the problem - and doctors prescribed her a round of antibiotics for what seemed to be an infection. Lisa said: “It happened suddenly - I feared I might even lose a finger when it went purple around the nail. “I feared it might be starved of oxygen - but it ended up being something completely different.” After having the gels removed and taking a break from nail products, she thought it was over. But after getting a set of acrylic nails put on again in April, the problem reared its head once more. But not only did her fingernails begin to lift again, but the skin around her nails became “like paper”. She has recently been prescribed a different round of medication to treat her. Lisa explained that being a mum to a young daughter poses issues. Her hand and nail pain makes everyday tasks tough and she is constantly having to ask for help from husband Lee, 45. She said: “Washing my daughter’s hair is hard because you have to bend your fingers. “Even strapping her in the car - if I catch my finger on the belt, I jolt from the pain because the skin is raw. “It gets so aggravated but wearing gloves doesn’t even help because sweaty hands aggravate it too. “Anything scented or fragranced makes it worse - I can’t put a conditioning treatment or mousse in my hair. Now Lisa has vowed to stay away from nail products for good - and warned others. She added: “People can get their nails done for years with no issues until one day it hits them. “I am going on holiday in August and I was booked to get my hands and toes done. Now I’m not getting them done. “This has knocked my confidence so much - I don’t normally care what people think of me, but now I hide my hands away. “It’s just embarrassing to have hands like this - there’s a coronation party this week, and if my hands aren’t better, I won’t be going. “I just want to do my bit in trying to get the word out that things might not be as good as they seem.” Read More Experts warn of ‘life-long’ effects of nail gel polish Fit and healthy father diagnosed with stage 4 bowel cancer reveals first warning sign Four bowel cancer symptoms that can show two years before diagnosis Mother left ‘looking like Freddy Krueger’ reveals first skin cancer warning sign Mum put on life support after infected finger led to ‘devastating’ diagnosis Age-defying pensioner shares two simple secrets to her youthful appearance

WASHINGTON Newton Minow's first speech as chair of the Federal Communications Commission was his most memorable. In addressing