List of All Articles with Tag 'he'

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A woman who was born with a rare inherited skin blistering disorder which caused her to get “bullied” and feel “like a freak” throughout her childhood and teenage years, as well as forcing her onto a soft food diet of “bananas and custard” for weeks at a time, now writes inclusive children’s books with a focus on disability to encourage “other children to grow up with confidence”. Vie Portland, a 52-year-old confidence coach, author and speaker from Winchester, was born with epidermolysis bullosa simplex generalised intermediate but was not formally diagnosed with the skin condition until she was 28. According to the NHS, epidermolysis bullosa (EB) is a rare inherited skin disorder that causes the skin to become very fragile, and any trauma or friction to the skin can cause painful blisters. Vie is yet to find a treatment that helps her condition, and her feet are regularly covered with huge internal blisters which feel like she has “stones under (her) skin.” Her condition even means that she cannot eat “anything acidic or too peppery” and often spends weeks eating “just bananas and custard”. She has also developed thoracic outlet syndrome, chronic bursitis, and often has spasms, because of walking with a limp to try to ease the pain. Now, Vie writes inclusive children’s books to raise awareness about living with a disability, because she grew up “afraid that there was no one else like (her)”, and hopes to write a book about someone with her condition next. Vie told PA Real Life: “So it feels like I’ve got stones under my skin all the time on my feet and it doesn’t matter how much you try to explain that to someone people just don’t get it. “Even things like if I meet friends for a drink in a lovely pub garden – I’ll be in agony because of walking on gravel and it takes so much energy out of me. “I can’t eat anything acidic or too peppery – sometimes I have to eat just bananas and custard for weeks.” Vie was born with the skin condition, saying: “I was born with no skin on my bottom and had some skin missing on my left foot. “The charity that works with people that have EB wasn’t around then – I spoke to someone recently from Debra, the charity, and they said if you looked at all the people on a double-decker bus, you’d expect to find at least one person with psoriasis. “But, you’d have to wait for over 700 buses before you met someone with EB.” As a child, Vie regularly had huge blisters all over her feet and the back of her heels. She explained: “I remember wearing jelly shoes one summer, and heat and friction are two of my triggers. “Throughout the day, blisters grew around the rubber shoes and I had to have the pair of shoes cut off my feet – it was excruciating.” When Vie was a teenager, she was very self-conscious of her condition, she explained: “I was in constant pain, and I struggled with all shoes and walking anywhere. “We’re always told not to pop blisters, but when you have EB they tell you to pop them because they get so big. “I didn’t know that at the time and it was just so painful. “People were noticing how I walk and I was embarrassed to show my feet – I didn’t have a normal childhood because of this. “Even something as simple as opening a bottle makes several layers of skin come off and cause me to have raw skin all over my hands, I was told this was weird by other people.” Doctors were baffled by Vie’s condition, over the years, she was told she had different types of eczema and even that she was allergic to her own sweat. But, at age 28, she was diagnosed with EB by a dermatologist in London. She said: “I just grew up believing that it was my fault and I was afraid that there was no one else like me.” “It all just made sense. “They even took pictures of my feet for a medical journal because it was so rare.” After getting her diagnosis, Vie began researching the charity DEBRA, which specialises in EB. She said: “I started finding out that there were people like me – it was amazing, growing up, I was bullied and felt like a freak.” Since then, Vie has sadly not been able to find a treatment that helps her condition. “There’s no cure for EB but things have moved on a lot over the past 20 years,” she said. “We have special types of dressings and creams which can help alleviate the pain.” On top of this, because Vie has been walking “unusually” for most of her life, she has developed thoracic outlet syndrome, chronic bursitis, and often has spasms. Vie said: “It can be frustrating at times because it just feels like no one will ever understand what it is like. “For most people, blisters are a bit painful, but it’s all right, but for me, it’s one of the worst pains in the world.” Now, Vie is focussing on raising awareness about living with a disability, and has recently written two inclusive children’s books called ‘Where Are We Going?’ and ‘Who Am I?’. She said: “I want other children to grow up with confidence and not to feel like a freak like me. “Children aren’t born with prejudice and I think it’s really important to teach them about all of our amazing cultures and worlds. “In my books, I don’t explicitly say the character is disabled until the discussion questions at the end – I want the character to be accepted and not defined by their disability. “I think people have more in common with each other than things that are different, and that’s a beautiful thing. “I’m hoping to write a book about someone with my condition – that’s my next plan.” Read More Charity boss speaks out over ‘traumatic’ encounter with royal aide Ukraine war’s heaviest fight rages in east - follow live Fraser Franks undergoing heart surgery – four years after ‘hidden’ condition cut short football career 4 viral TikTok make-up trends you’ll actually want to try Childhood Cancer Awareness Month: What are the warning signs that your child might have cancer?

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Former Newport defender Fraser Franks faced a difficult “grieving process” when a heart problem cut short his football career at age 28. But four years on, as he prepares for surgery that will ultimately save his life, he is “grateful” the condition was picked up early – as many people aren’t even aware they’re at risk. “I’ll be having a mechanical valve fitted and work done on my aorta,” Franks, now 32, told PA Media. His surgery is set for September 4. “It is a big operation and I’ll be in hospital for about 10 days. And the recovery after, I won’t be able to lift anything, even a bag of shopping, for two to three months. With a four-year-old daughter, that’s going to be difficult for me and her,” added Franks, who shares daughter Nellie with his wife, former S Club 8 singer Stacey McClean. “It’s been a lot to get my head around. There will be certain things I can’t do afterwards and a lot of lifestyle adjustments, but I’m really happy and content with it. I’m grateful that this has been found and that there’s a solution for me, where unfortunately a lot of people haven’t got that. “I’ve had conversations with cardiologists and surgeons [who’ve said] this is going to save my life, I probably wouldn’t live much longer with the heart I’ve currently got. So I’m really grateful for that, and it’s only through playing for a professional football club that this was picked up.” Franks was born with a bicuspid valve – meaning his aortic valve, which helps control blood flow in the heart, had two cusps (flaps) instead of the usual three. The condition is believed to affect around one in every 100 people, but it often doesn’t cause symptoms and only becomes serious if the valve begins to leak or develops severe narrowing (aortic stenosis), which is what has happened in Franks’ case. A routine medical at 16 first picked up the defect. Franks, who signed with Chelsea at age eight, had always been fit and healthy, but when he signed with Brentford at 16, like all players joining pro clubs he was given a heart scan. Further investigations revealed the bicuspid valve, but because it wasn’t causing problems, he was given the green light to continue as normal. Franks carried on, trying not to give it too much thought – until at 28, he suddenly started feeling unwell after a game and was rushed to hospital the next day, worried he was having a heart attack. “I wasn’t having a heart attack or anything like that, but I contracted an infection. While I was in there though, I told them I’d had this heart issue when I was 16, so they scanned me and saw the condition had worsened,” he recalled. “I’d developed aortic stenosis and the valve was leaking a lot more. Then it was deemed unsafe for me to carry on playing football, so I had to stop playing there and then.” London-born Franks has teamed up with the British Heart Foundation for their September Spotlight campaign, which aims to shine a spotlight on hidden heart conditions. His story highlights how heart problems can potentially affect anyone – including those who are young and seemingly very fit and healthy. Even when symptoms are mild or barely noticeable, undetected issues could become serious and even life-threatening, which is why research and awareness are so vital. Plus, as Franks has experienced, there are complex layers and emotional challenges to living with a hidden heart condition too. Being forced to suddenly retire early when he’d previously felt fine – and still looked well on the outside – was tough. “Ever since age eight, I’d been known as ‘the footballer’. It had been my whole identity, so to retire at 28 out of the blue was difficult,” Franks explained. “I think I kidded myself in the first six months, where I was saying, ‘Yeah I’m fine, I’m enjoying retirement and all that good stuff’. But I was really struggling and drinking heavily. “I reached out and got some help and had to do a lot of therapy. It really is a grieving process, and I had to figure out who I was and what I enjoyed away from being ‘the athlete’. “And I didn’t play at the top level, so I didn’t have savings in the bank – I had to pretty much get to work straight away and earn a living. My wife was heavily pregnant then too, so there was a lot of stress and overwhelm at that period.” Yoga and meditation also proved a huge help in coming to terms with everything, and Franks has since found a new sense of purpose, channelling his experiences into helping others. “I do a lot of work around addiction and alcohol now, because I really struggled with those things. That’s become a big part of what I do now, helping people who want to transition away from sport, and working with young athletes on addiction and mental health.” He took up yoga as a gentle form of exercise when doctors told him strenuous sport was too risky. “I just completely fell in love with it,” Franks added. “I’ve found a real passion for it. It’s actually a goal of mine now – it’s going to be something I’ll be thinking about when I’m in hospital – when I’m healed, I want to go to India or Bali and actually earn a qualification and get trained as a yoga teacher. “Instead of focusing on all the things I’m unable to do, that’s something I will be able to do. That brings me a lot of comfort.” This September, the BHF is shining a spotlight on hidden heart conditions and urging everyone to get involved by supporting the charity however they can, with stories, stuff, time or money. Visit spotlighton.bhf.org.uk Read More Charity boss speaks out over ‘traumatic’ encounter with royal aide Ukraine war’s heaviest fight rages in east - follow live 4 viral TikTok make-up trends you’ll actually want to try Childhood Cancer Awareness Month: What are the warning signs that your child might have cancer? How students heading to university can save some cash and budget wisely